Monday, February 3, 2014

Sisyphus IV: Shovelus Maximus

Well you all know I’m a fan of the Sisyphus series ("movies" of the “snow” genre).

For anyone who isn't hip to this great franchise, the main character, a 40-ish married woman (played by the inimitable Carla Ulbrich), is based on the Greek mythological figure Sisyphus (http://en.wikipedia.org/wiki/Sisyphus) who was punished for chronic deceitfulness by being compelled to roll an immense boulder up a hill, only to watch it roll back down, and to repeat this action forever. Only in this case, it's shoveling snow in a New Jersey suburb.

So far there have been 4 movies:

Sisyphus: One woman. One shovel. one big ol' pile of snow
(this one ended in a cliffhanger- she hasn’t worked out in a couple months- will she really go out and shovel another 6-8 inches later?)

Sisyphus 2: There’s more (a continuation of part 1)

Sisyphus 3: This Time It’s Personal  (favorite quote from Sisyphus 3(After the snowplow dumps the snow she just shoveled right back into her driveway.): “maybe you can’t step in the same stream twice, but you CAN shovel the same snow twice.”)

And today brought the release of Sisyphus 4: Shovelus Maximus.

This episode of the Sysiphus series had a totally different opening. At first, I wondered if i was watching the right movie.

In the first scene, we see throngs of fans heading to superbowl.
It’s 50 degrees out on Feb. 2, in New Jersey. Kinda hard to believe, but, hey suspend disbelief. It’s the movies.

Setting is Secaucus station (huge station very close to the “MetLife” stadum).
It’s so jam-packed it’s 100 degrees in the train station. People are passing out from the heat. Security just gives up on checking people’s bags, but it still takes 2 hours for anyone to get to the game from there. People on the train are chanting “Jersey sucks! Jersey sucks!” That’s when I knew i was in the right theater.

Cut to Monday (the next day). Sysiphus had a long busy weekend (not at the superbowl). She wakes wakes up early and sees snow, then rolls over and says to herself “i’ll take care of it later. There’s only 1-3 inches predicted.” Hours later, she wakes up and to drooping trees and 8 inches on snow on the ground.

My favorite line from this episode:
 “someone somewhere made a bet that weather.com prediction was accurate and lost big time.”

After a quick protein shake and some vitamins, she puts on a ski suit over her tshirt and sweats, plus a hat, scarf, and battery-operated heated gloves. However, unlike all previous Sysiphus movies, it’s relatively warm out- 30 degrees and no wind. She is totally overdressed and sweating like a pig.
Hearing her grunting at the heavy wet snow, an Indian neighbor walking by offers to help. Sysiphus declines out of pride, and because she has no 2nd shovel. That would mean not accepting help, but just letting someone else do it. She jsut smiles and says “No thanks -I’m almost done.” (She's not).

Meanwhile her husband (in a way, the real Sisyphus- perhaps a reveal in a later sequel?), pounds away inside the condo on his laptop and phone for his corporate job, feeling like a schmuck because his wife is shoveling snow while he sits inside. he doesn’t believe her when he says she actually enjoys shoveling snow (even though she used to enjoy cutting grass, before moving into a condo). he feels cheap for not hiring someone. she secretly enjoys the workout and sense of accomplishment. but if she had to shovel a 2nd driveway? no.

Also different this time, the snowplow, usually a foil, is working FOR her. that’s new. It’s coming around the circle the opposite direction from usual, taking the snow away from her driveway and dumping it in front of the yard/ further down the street. so not *everything* is working against our protagonist this time.


This time, a couple neighbors walk by, griping about the condo association. Why do we pay $300 a month and have to shovel our own snow- AND pay to use the pool? Good question, but that scene goes nowhere. Except maybe to show that Sisyphus doesn't get riled up by it.

For the first time in the series, the snow is heavy and wet, so the movie is reallllllly long. there’s an entire hour of just shoveling and interior dialog, broken up only by the snowplow or a neighbor walking by.

I have to ask though: why, EVERY SINGLE TIME, does she clear the walkway and driveway, then look surprised that she has to clear the car and then the driveway again? It happens every time- why is she still surprised? Though amusing, I find this part a little far-fetched.

I kinda wonder why they keep making movie after movie with the same plot, but i guess it’s better than going back and getting Sysiphus’ backstory, with a child actor and way too many CGI and special effects that not only are the dialogue and directing neglected, they seem to be forgotten about completely.

But who am I to criticize? I keep attending the sequels. I have been and will attend every sequel, even if it snows.

The movie ends with Sysiphus watching the news, and the husband bringing her a glass of water (no ice). There’s footage of Superbowl fans stuck in the Newark airport, about 30 minutes from her house.

Given the opening and closing scenes, I guess what we’re supposed to learn from this is human suffering is universal. Struggle is part of life. People stuck in a massively overcrowded train station, or an airport full of canceled flights, or someone shoveling snow off the same driveway for the 4th time in 3 weeks.

But I’m not sure she learned the lesson, as her last line is her yelling at the TV “Hey, at least you eventually get to leave!”

--------------
Rumors are swirling about a sequel being made *this weekend* (already?! Guess they’re striking while the shovel’s icy cold!) with 4 FEET of snow. I’m skeptical, but if it happens, I’ll be first in line to enjoy the show.

Asked if she would be up for another sequel so soon, the lead actress did her best Sylvester Stallone impression: “Absolutely.”
----------------
(Yes, this is what I think about when I’m shoveling- "what it would look like on the big screen?" It keeps me amused and enjoying the task past the point of where I would have naturally enjoyed it, which is for about 10 minutes).

Carla

Carla Ulbrich

The Singing Patient

Humor, song and hope for people  who need it most- patients and healthcare workers


www.thesingingpatient.com

Wednesday, January 22, 2014

Are you allergic to your favorite food?

There is a lot of info out there about diet and nutrition, and a lot of it is contradictory.

I'm writing this post to share what has worked for me. There's not ONE answer for everybody, because every person's body and disease pattern is different.
But I do have a starting point that I think will help anyone with any autoimmune disease, or anyone who just feels tired and foggy all the time.

In 1994, I read that 100% of lupus patients have food allergies. Allergies create antibodies. Lupus is marked by antibodies. So i believe if we eliminate allergens, we can calm down our immune system and the lupus.

It has worked for me.  I am on ZERO lupus meds. As long as I stick to my diet and get enough sleep, I am fine. I can do aerobics, tap dance, etc. And I was nearly dead from kidney failure, congestive heart failure, and a stroke.

I had myself tested for food allergies using a blood test that checks for *delayed* reactions (not pinprick tests that find immediate reactions). Allergic reactions can occur as much as 3-4 *days* after eating something you're allergic to.

In my book, I recounted the story I read of a British woman whose Rheumatoid Arthritis was caused entirely by her cheese addiction. And cured by her eliminating all dairy from her diet.

This is what keeps me healthy:
I avoid gluten, dairy, eggs, shellfish, and nutrasweet.
I eat fruits and/ or vegetables daily.
I exercise vigorously 3-4 times a week.
I drink water between meals.
I limit sugar.

I've been to numerous alternative health practitioners over the years and even without blood tests, almost all of them suggest eliminating gluten, dairy, or both.

I suggest making only 1-2 changes at a time, because changing your diet too radically too quickly can make it hard to stick to. I have quit diet soda 3 times. This last time, I have been off soda for 5-6 years, and when I've accidentally ingested a Life Saver or something with nutrasweet in it, I almost immediately get diarrhea. All the knowledge about how bad nutrasweet/ aspartame is was not enough of a deterrent, but explosive diarrhea- yeah, that works.

The best way to know if you are allergic to a food is if you
a) crave it a lot
b) frequently eat it for breakfast
c) can't imagine life without it

Anything that meets one of those criteria- that is a food that has to go, because you are in an allergy/ addiction cycle.

Dr. Mark Hyman suggests eliminating a food like this for 7 days, then, on the 8th day, eating a normal amount of this food and seeing whether you react to it within the next 2-3 days (headaches, digestive problems, joint pains, any physical problems). If so, you may have just connected the dots between eating and suffering from .

Them, you can *choose* to keep eating that food and feeling crappy, or you can decide you'd rather feel better. But at least now you know what causes your headaches/ stomach problems, etc.

It's hard to keep track in your mind what symptoms are getting better and worse. We tend to not remember everything. I suggest if you are making changes in your diet or lifestyle or medications, that you track your symptoms every day using an app like Symple (iphone only). If you don't have a smart phone, sign up for my free symptom tracker (a Word document that you can customize) here:

http://thesingingpatient.com/free_offer/

And yes I can get a gluten free pizza with no cheese (and add some "cheese" made from nuts when it arrives). I'm pretty OK now with avoiding all the problem foods.  I'm not perfect. I drink caffeine (usually just one glass of tea a day), I eat too much sugar, I enjoy some chocolate. But I'm doing enough to stay well. It's not about perfection for me; it's about doing something that works, and that I can stick with. Haven't taken lupus drugs in 7 years, and I was severely ill. So I'd say my diet is working for me.

Think about it. Give it a try. if you want some support, drop me an email. I moonlight as a health coach and can help you out.

Carla
The Singing Patient: Author, Health Speaker, Humorous Songwriter and Entertainer
EMAIL: carla AT thesingingpatient.com (remove spaces and "AT" and insert @ sign)
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Monday, December 30, 2013

Eating Gluten Free ... and politics?

The other day, I posted this status on facebook:
"Ok, everyone was right. Chicken lettuce wraps are amazing! And available gluten free! I'm stuffed!!! — at P.F. Chang's China Bistro."
Somehow, it turned into a "Obama=Osama, unaffordable care act, global warming is a hoax" debate. Not only am I not making this up, I'm not even exaggerating. I have, however, summarized people's posts, in order to cut this post from 10 pages down to 1 or 2.

Of course, like all threads, this one could (and might) go on forever, but as far as I know, we managed to get back on topic without anyone having to "unfriend" anyone. And maybe some of us learned a few things. For example, I did not know some mayonnaise has gluten. Or that there were so many potential spellings for gluten.

Summary of conversation thus far:
    • - (me) PF Chang's makes delicious chicken lettuce wraps!
      - I can get you the recipe!
      - (me) great! thanks! 

      I then went offline for the evening and came back to this the next day (I didn't chime in until the end):

      - Chang's screws up GF orders
      - no they don't
      - not all mayonnaise is gluten-free
      - what is gluton?(sic) I think glutten (sic) allergy is a hoax, just like Santa and global warming
      - not it's not
      - untreated celiac disease is an underlying issue for many other diseases
      - I don't believe you, because my neighbor wouldn't drink my homemade beer, claiming he was allergic to yeast. I think it was just an excuse to be antisocial.
      - maybe they really are allergic to yeast. Lots of people are.
      - i was trying to be funny
      - really?
      - prove global warming is a hoax and the free market is actually free
      - liberals, Obama, Osama, unaffordable care act, Al Gore is a fat liar. I hope this has helped.
      - WTF does this have to do with PF Chang's gluten free lettuce wraps?
      -(me) How did my comment about a delicious meal turn into a political debate about global warming?

      - (me) I eat gluten = joint pain and swelling. Dairy = tendons seize up. Avoid those foods, avoid those problems. I wish it were a hoax, then I could eat whatever I want. Choosing to not believe something doesn't make it untrue.

      - I'm glad you got a meal you enjoyed. Eating out is tough when you're gluten-free.

      - There is a good point made by Carla here, Know your own body and what works for it. My point was don't just believe something because people talk about it. And the Chicken Lettice (sic) wrap does sound good! I'd still like it wrapped in bacon and a Hoagie.  (note: this is the guy who said he doesn't believe in Santa, global warming, or yeast allergies. Perhaps I should send him some bacon).
       

      Clearly there is no issue you can post about that someone can't turn political. Not even "Hey, wasn't dinner great?" But if you're lucky, one of your friends will point out that we're way off-topic.

      Meanwhile, I refuse to back down from my assertion that my meal was, in fact, delicious.


      Carla Ulbrich
      www.thesingingpatient.com

Monday, November 25, 2013

Are Ya Havin Any Fun?

What's one of the best things you can do for your immune system?
Once a week, have FUN with friends!
Yeah, fun is GOOD for you. I hope knowing that doesn't take the fun out of fun for you...

Having fun optimizes your immune system for 3 days afterwards. And if you have fun scheduled ahead of time, it also optimizes your immune system for the 3 days before the event!
Optimize? What does that mean?

Those of us with autoimmune diseases run away from anything that might BOOST our immune system. That is the last thing we want, is for our immune system to be MORE active. Autoimmune conditions, by definition, are defined by the patient's immune system attacking their own healthy tissues. And all medical treatment (drugs) is aimed at suppressing the immune system, in order to save our tissues and vital organs from attack. The last thing we want to do is rev it up.

But what we have learned about fun (and laughter as well) is that is *optimizes* the immune system. If it's to revved up, it brings it back towards normal. It it's too depressed (such as with a cold, flu, or AIDS), it brings it up closer to normal.

Now I know we think- ugh. fun. I'm too tired to go to Disneyland. Uh, yeah, me too. Even when I'm feeling fine, that idea wears me out. That degree of effort is not necessary in order to have fun.

I'm happy just sitting with my uke making up ridiculous songs and singing them to my husband, or a fellow funny person on skype. Or sitting around the dinner table with a bunch of old friends talking about anything at all, totally unplanned. Or putting a fake poop in someone's shower and waiting for them to see it. Or sitting with a fellow songwriter or comedian writing songs or jokes. Or doing madlibs with my nieces. Or karaoke. Thrift shopping or yard sale-ing with a friend (one who also likes thrifting). Or going dancing. Or putting on great music in my living room and dancing like an idiot.

How 'bout you?
What's your idea of fun?
Share it in the comment section!

Carla

The Singing Patient: Author, Health Speaker, Humorous Songwriter and Entertainer

http://www.thesingingpatient.com
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Monday, November 11, 2013

Wanted: Your Tips for those with a chronic illness

Hey friends!

I thought I'd try a collaborative effort.

On the various forums I've participated in ( such as www.bensfriends.org, www.lupusconnect.com),  I've noticed that there is a collective wisdom that comes from an interactive conversation.
Each response triggers more thoughts and ideas and questions.

I was working on a "Top 10 Tips For Those with Chronic Illness" list, when I realized, "I bet this list would be greatly improved by tapping into that collective wisdom."

When I've got the finalized "top 10" list, I'll be giving it away for free on my website. I'll take the Top 10 tips you voted for (or added and then voted for), add a little art (on second thought, I'll have someone with actual artistic abilities do that part), and make it into a nice 8 1/2 x 11 PDF that you can print and post (or share, or whatever you like).

Survey is now closed, and I'm working on tallying the results to share the top 10 with you!

Carla