Showing posts with label gluten intolerance. Show all posts
Showing posts with label gluten intolerance. Show all posts

Monday, December 30, 2013

Eating Gluten Free ... and politics?

The other day, I posted this status on facebook:
"Ok, everyone was right. Chicken lettuce wraps are amazing! And available gluten free! I'm stuffed!!! — at P.F. Chang's China Bistro."
Somehow, it turned into a "Obama=Osama, unaffordable care act, global warming is a hoax" debate. Not only am I not making this up, I'm not even exaggerating. I have, however, summarized people's posts, in order to cut this post from 10 pages down to 1 or 2.

Of course, like all threads, this one could (and might) go on forever, but as far as I know, we managed to get back on topic without anyone having to "unfriend" anyone. And maybe some of us learned a few things. For example, I did not know some mayonnaise has gluten. Or that there were so many potential spellings for gluten.

Summary of conversation thus far:
    • - (me) PF Chang's makes delicious chicken lettuce wraps!
      - I can get you the recipe!
      - (me) great! thanks! 

      I then went offline for the evening and came back to this the next day (I didn't chime in until the end):

      - Chang's screws up GF orders
      - no they don't
      - not all mayonnaise is gluten-free
      - what is gluton?(sic) I think glutten (sic) allergy is a hoax, just like Santa and global warming
      - not it's not
      - untreated celiac disease is an underlying issue for many other diseases
      - I don't believe you, because my neighbor wouldn't drink my homemade beer, claiming he was allergic to yeast. I think it was just an excuse to be antisocial.
      - maybe they really are allergic to yeast. Lots of people are.
      - i was trying to be funny
      - really?
      - prove global warming is a hoax and the free market is actually free
      - liberals, Obama, Osama, unaffordable care act, Al Gore is a fat liar. I hope this has helped.
      - WTF does this have to do with PF Chang's gluten free lettuce wraps?
      -(me) How did my comment about a delicious meal turn into a political debate about global warming?

      - (me) I eat gluten = joint pain and swelling. Dairy = tendons seize up. Avoid those foods, avoid those problems. I wish it were a hoax, then I could eat whatever I want. Choosing to not believe something doesn't make it untrue.

      - I'm glad you got a meal you enjoyed. Eating out is tough when you're gluten-free.

      - There is a good point made by Carla here, Know your own body and what works for it. My point was don't just believe something because people talk about it. And the Chicken Lettice (sic) wrap does sound good! I'd still like it wrapped in bacon and a Hoagie.  (note: this is the guy who said he doesn't believe in Santa, global warming, or yeast allergies. Perhaps I should send him some bacon).
       

      Clearly there is no issue you can post about that someone can't turn political. Not even "Hey, wasn't dinner great?" But if you're lucky, one of your friends will point out that we're way off-topic.

      Meanwhile, I refuse to back down from my assertion that my meal was, in fact, delicious.


      Carla Ulbrich
      www.thesingingpatient.com

Thursday, November 7, 2013

Free Online Gluten eSummit

Gluten and its role in autoimmune disorders is a frequent topic of discussion amongst alternative medicine practitioners. And, for me, eliminating gluten (and dairy and several other foods I'm sensitive to) from my diet has changed my life.

At one point I was on 9 drugs, plus chemotherapy, transfusions, and Procrit shots to treat congestive heart failure, kidney failure, neuropathy and anemia, all caused by lupus. Now, my diet choices have allowed me to stay healthy with ZERO immune suppressants for the last 6 years.

So, when I saw the information about a free e-summit, I knew that I had to share it here.

http://theglutensummit.com/

Dr. Tom O’Bryan of theDr.com has gathered 29 of the world’s experts and opinion leaders on the topics of gluten-related disorders, nutrition and healthy living for a series of online interviews taking place for FREE from November 11-17, 2013. (Don't worry- it's not all day, every day! One video per day will be posted).

During the summit, you will:
  • Learn about the latest research on gluten-related disorders
  • Gain knowledge of proper diagnosis/treatment methods
  • Ask, “Could this health issue be due to gluten?”
The Gluten Summit is targeted towards both doctors AND patients (really, anybody), so that we all have a better understanding of the issues.

The goal of The Gluten Summit is to shift the discussion and recognition of gluten-related disorders forward by five years. Meaning, lets get the "gluten" conversation between patients and doctors that will be happening five years from now to happen now.

For a lot of patients, discovering and eliminating any food sensitivity, including gluten, can mean more control over their health, fewer ( or zero!) drugs, and feeling better. That is what it has meant for me!

Carla Ulbrich

The Singing Patient: Author, Health Speaker, Humorous Songwriter and Entertainer

http://www.thesingingpatient.com
http://www.facebook.com/TheSingingPatient
http://www.twitter.com/singingpatient

Tuesday, September 6, 2011

Causes of Autoimmune Diseases

Last time, we discussed possible reasons why more women than men develop autoimmune diseases. In the case of lupus, it's 9 women for every 1 man who is diagnosed with lupus.

Slate.com offered some possible theories for the causes of autoimmune disease, based on the gender imbalance: genetics, pregnancy/ birth leaving another person's cells in your body, and estrogen. Here's the problem with these theories: the new conventional wisdom is that genetics do not really cause disease. As Dr. Oz would put it, "Genetics load the gun; lifestyle pulls the trigger." Wish I had a better, less violent metaphor, but it does get the point across. Genetic tendencies are not our inevitable fate. Just because I'm in a bar, it doesn't mean I'm going to get drunk. (Slightly less violent metaphor?)

Now before I sound like I"m blaming the victim, let me state 2 things. One, I've been living with lupus for 20 years, so I'm talking about me, too. Two, many of us are doing things we *think* are good for us, usually because we've been told that it is, but it turns out to be a problem in the long run. I'm trying to empower us to get better, so please take this not as fingerpointing at the sick person, but fingerpointing at what is possibly making the person sick. I honestly believe that none of us wanted or chose to have lupus.

In my opinion, everyone with an autoimmune disease should be tested for the following:
1) Vitamin deficiencies, especially Vit. D
2) heavy metal poisoning, including mercury
3) Celiac disease and Gluten intolerance
4) other food allergies
5) Candida overgrowth

Any one of these, and certainly a combination of these, is going to cause problems. And if left untreated, the problems will cause problems. Multiplying like rabbits. And not the good cute rabbits who lay chocolate Cadbury eggs on your lawn on Easter. Mean rabbits.

And here's the thing I was talking about before- when we do stuff we think is good for us, like stay out of the sun because we have lupus, we worsen our vitamin D deficiency. We *must* supplement with high quality vitamin D if we are avoiding the sun, or live north of Maryland, esp. between October and May. Symptoms of vitamin D deficiency include depression, chronic fatigue, weight loss, diabetes, heart disease, stroke, osteoporosis. http://www.vitaminddeficiencysymptomsguide.com/

There are so many examples of us doing something that's not even fun, thinking we're making ourselves healthier when in fact we're making ourselves worse. You would think if you're going to pay the price for bad decisions, you could at least enjoy yourself along the way. We get a cavity, so we go to the dentist, and he gives us a filling. that's made of MERCURY, a known toxin, extremely poisonous. It can cause rashes, muscle weakness, kidney function, memory impairment, neurological problems, insomnia (is this sounding like lupus to anyone?). BTW, there are non-mercury fillings available.But you need to ask your dentist if (s)he is mercury-free. If your filling is silver in color, it definitely has mercury in it,  as much as 55%. http://en.wikipedia.org/wiki/Mercury_poisoning

We think we're being healthy eating whole wheat bread. Sounds like a nice hearty, healthy food. But not if you have Celiac disease or gluten intolerance. Celiac causes malnutrition. If you have Celiac and continue to eat foods that contain gluten, it will kill off all the villi in your small intestine and make you unable to absorb nutrients from your food. You can then stuff yourself and still be starving from malnutrition. Now there's a magic trick I don't want to volunteer to be a part of. Milk products- another food we were told was healthy- is also a problem for people with Celiac. http://www.webmd.com/digestive-disorders/celiac-disease/celiac-disease-symptoms . People gluten intolerance suffer the same symptoms as those with Celiac, but the blood tests come out different. http://gluten-intolerance-symptoms.com/

get tested for other food allergies. 100% of lupus patients have food allergies. 100%?! And food allergies come in 2 sizes: immediate (you know these- you eat shrimp, you have hives a few hours later; you eat peanuts, you can't breathe; me, I eat pineapple and my tongue immediately itches then hurts for 3 days- those kinds of food allergies are obvious); but then there's the delayed reactions- you could eat something then get joint pain that doesn't show up for as long as 4 days later. Who's going to figure that out? Well, a blood test, that's who. Or, alternately, the elimination diet. http://en.wikipedia.org/wiki/Elimination_diet . People blame autoimmune diseases and symptoms on genetics, sin, bad karma, or some symbolic psychological issue manifesting itself... Yeah, OK, and maybe I'm just allergic to cheese. On top of whatever I started with, I developed so many new allergies after taking prednisone, I practically needed to live in a bubble. A latex free bubble that is.

Here's another one, and all too common. We get the flu or bronchitis and we go to the doctor- the responsible thing to do- and he gives us antibiotics. Which, if you have a cold or bronchitis, doesn't really help, because those are viruses, not bacteria. But we take it anyway to "avoid getting a secondary infection," but really because that's the only trick the doc has up their sleeve. When the only tool you have is a hammer, everything looks like a nail. Well, when you take antibiotics, they kill off all the good bacteria in your digestive system. Yeah, our digestive system is filled with all kinds of cooties, and we need those cooties. Those good cooties are what we need to multiply like (good) rabbits. Once the good cooties are killed off, the bad cooties, especially candida can take over and wreak havoc. And not just the "inconvenience" of having a smelly yeast infection or thrush, which are gross, but I'm talking systemic problems: brain fog, digestive problems joint problems, exhaustion, irritability, headaches, rashes, sugar cravings, and worst of all- zits! oh Lord not zits! http://www.candidasymptoms.net/#candida_symptoms . Know what else causes candida overgrowth? Steroids. Prednisone. Oh the irony.

OK, that's a lot to chew on, even though it's gluten free. And you could just go on a candida diet or gluten free diet without getting tested, but trust me. Both of those diets are so challenging, especially at first, that you'll want to know for sure that you need to be on them. It will help you stay motivated. You can get tested for heavy metals, candida antibodies, celiac and gluten intolerance antibodies, and vitamin deficiencies and most of these tests are just blood tests. The celiac one can involve an endoscopy and that's  a bigger deal, but if you have celiac and find out, it would be a life-changing piece of information.


Until next missive-
Carla

Carla Ulbrich, The Singing Patient
_____________
www.thesingingpatient.com
www.twitter.com/singingpatient
www.youtube.com/user/carlaulbrich

"I am reading Carla's book How Can You NOT Laugh at a Time Like This? and loving it. I LOVE Carla's songwriting, so I'm not surprised that her prose writing is as smart, funny, and insightful as her music." - Christine Lavin

get the book! http://tinyurl.com/348hroc

Monday, April 4, 2011

Gluten free is Bulls**t!?

Every now and then I'm encouraged by the availability of gluten-free foods out there, both in the frozen foods section and in restaurants. The restaurant we went to yesterday ("Ciao!") had a sticker on the front door for glutenfreerestaurants.org. I thought "how cool! we're making progress! Maybe I'll be able to order something other than salad when I go out to eat.

But this article in the Daily Post proves we still have a lo-o-o-o-ng way to go.
 http://tinyurl.com/65xbdaf

"Gluten free is bull----!!" Damian Cordone, of Piscataway, N.J., mouthed off in a March 10 Facebook photo wall post. "Flour and bread have been a staple of life for thousands, THOUSANDS of years. People who claim to be gluten intolerant don't realize that its all in their disturbed little heads."
Cordone added that he lies to diners who make the dietary request.

... And then he proceeds to serve them *high-gluten* pasta.

Who's really got the disturbed little head here?
I don't know where this hostility is coming from, so I'm just going to assume it's ignorance.

Would he take someone allergic to bees and shove them into a beehive?

Probably not, because the other problem with creating understanding for gluten intolerance is that the reaction to gluten is not going to happen right there at the table, like an anaphylactic reaction to peanuts (or bees).

Unfortunately there are some people who are going gluten-free thinking just to lose weight, and that -ahem- tips the scales of opinion against those of us who need to be gluten-free for more serious health problems.

Being gluten-free is not convenient. I do understand it's something of a fad at present, but for many of us, it's not a fad, it's a requirement.

Here is a webpage where you can find gluten-free friendly restaurants.
http://www.allergyeats.com/

All the same, I would just avoid ordering pasta when eating out. And I wouldn't eat anything cooked by chef Damian Cordone, because that man has issues. If he's that angry about gluten-free requests, imagine if you sent the food back because it's undercooked. He'd probably throw it on the floor and spike your sauce with Ajax. He needs a) anger management b) a different line of work c) both d) to develop gluten intolerance himself so he can finally "get it."

Carla Ulbrich, The Singing Patient,
is the author of "How Can You *Not* Laugh at a Time Like This?"
Get Carla's Book at Amazon.com
www.thesingingpatient.com