Sunday, December 14, 2014

I think my gums are infected

Day 80:
Staying up too late again this week. Sleeping super late post-surgery threw off schedule.
Got up, taught a couple lessons then went to a music party where I was regaled with a new and improved version of my parody of "little brown jug"-hilarious! Several new verses.

Then halfway through the party my mouth really started hurting. Tried 1/2 Percocet- not enough. So had the other half. And weirdly I got sleepy. Usually Percocet revs me up.

Put a call in to the dentist. Will see what he wants to do and when... Meanwhile I'm literally sucking on an onion hoping it'll kill some cooties.

So for all you kids in elementary school yes my face hurts and I'm already sucking an onion. No room for a rotten egg.

Going to bed! This too shall get resolved. I've survived much worse.

The Singing Patient  

Friday, December 12, 2014

Still as twisted as I was in 8th grade

Day 79:
I think I can sum up my day (today) on the plan in one sentence:
When it hurts to chew, it's easy to not overeat.

At least I have superfood shakes and high-quality vitamins. Wouldn't it be ironic if I got my teeth fixed only to have them fall out from malnutrition? Don't worry- ain't gonna happen. My twisted sense of will remain twisted, twisted though. After all the challenges over the years, I'm still as twisted as I was in 8th grade.

Meanwhile I actually look forward to being able to sneeze and spit. Neither are allowed, lest I blow out my stitches. So... That'll be my celebration when the dentist gives me the go-ahead: slurping, spitting, sneezing! Where's a nice restaurant Joe and I can go to for this?

The Singing Patient  

Thursday, December 11, 2014

Day 78: 3 pounds slimmer!

Day 78:

3 pounds slimmer!
Total so far: 9.5 slimmer.
6 lbs to goal weight!
Of course the real goal is HEALTH!

I've been skinny, I've been fat, and I've been healthy and skinny, sick and skinny, sick and fat, getting by and fat (my definition of fat = 25 pounds over my ideal weight. Which I think does put me in the "mildly obese" category. but let's forget numbers for now...).

My purpose, which must not be forgotten (most especially by me), in starting this new phase of my Health Quest, was to get truly healthy. To be free of chronic pain, to have energy and to be able to focus mentally on work and go do fun things socially.

My mouth is healing (it was really itchy last night), It's still kinda of unpleasant to eat. But eat I must. I have a light teaching/ gigging schedule this week, which allows me to pace myself so I can heal properly this time. I really don't want to have anyone cut these gums open a 3rd time.
Slept in the bed in a "pile" with Joe and Easy last night (and my blackout curtains and white noise machine). LUXURY!

Following up with dentist on Tuesday. Hoping for a good report. Then I guess we'll talk about when we're going to work on the right side of my mouth. Oy... I CAN DO THIS!

(But first, a breather...)
Cheers my lovelies-

The Singing Patient  

Wednesday, December 10, 2014

Bored therefore braver!

Day 77:

My face hurts. (I know, it hurts you to look at it. Yuk yuk). Since eating is an unpleasant task, I decided to make this a cleanse day (a day involving very little food).

I aimed low today and missed (still didn't finish my to-do list for the day). But I'm up and around.
Even took the dog for a walk. Well, She saw the snow and decided we weren't going for a walk, but still- it counts. I got her and myself dressed and out the door.

She's only 6-7 pounds and this is our first snow this season. As winter persists, she'll get bored and therefore braver. That's my MO: bored therefore braver! Well one of my MOs.

Stuck to the plan. Might graduate to the bed tonight. Was awfully noisy down here this morning- leafblowers (during snow flurries- odd), doorbell numerous times. And I miss my blackout curtains and white noise machine. Think I'm past danger of hemmorhage.

Have song idea. Need to finish and make vlog!

The Singing Patient  

Tuesday, December 9, 2014

Day 76: My quest to get well

Day 76: day 75 post is up- I just didn't type "day 75" at the beginning.

Day 76 of what? Well 2 things. My quest to get well- really well. Time for the next phase in my 21-year journey in reclaiming every last shred of my health and leaving no stone unturned. And day 76 of the nutritional cleanse program I started on sept. 24.

Sept 23, my rhuematologist (after 21 years I'm still not sure how to spell that!) got my labs back and wrote me a prescription for oral chemo. I've been on it before. It's expensive, it gives me diarrhea and body odor, and increases risk of lymphoma, leukemia, and a fatal brain infection.
What's not to love?

And this is a "maintenance" drug- meaning the plan is usually to get and stay on it. (My eulogy: "how sad she died of a brain infection. We will all remember her for her songs, her humor, but most of all her BO and frequent bathroom trips").

All along I've believed that my illness was caused by something. Not sin, or genetics or bad luck (but thanks for those theories, well-meaning friends!), but plain old cause and effect. And so I think back to when things changed.

Certainly the year before I got sick was very stressful. But in my heart I know things changed several years before that, after my wisdom tooth extraction. I've always known that. I just finally found someone who could fix it!

I'm only halfway through the process (opened up then filled the 2 left cavitations), and it was no walk in the park. And yes my mouth hurts right now. But I've had much worse.

I look forward to filling the other 2 craters in my jaw, making it whole again. And having that be a big part of making me whole again.

I don't think I would be dealing with the aftermath as well if I hadn't spent the last 73 days eating super clean food. It's all a big puzzle. Hoping these are the last couple pieces.

I slept on the sofa last night and will again tonight, propped up to prevent hemorrhaging. Geez medical words are hard to spell! Enema! Ok not that one. Anyway I slept 12 hours (barely slept night before surgery - much anxiety) and today I got to eat.

And now for some mindless tv.

The Singing Patient