Survey for SLE patients with lupus nephritis (kidney involvement)

A small pharmaceutical company from Canada is developing an investigational drug for the treatment of lupus nephritis, and is conducting this study to demonstrate its efficacy and safety when taken orally twice daily when compared to placebo.  The study will last about twelve months and consist of about 13 visits to the study clinic during that time.

Volunteers who participate may or may not benefit from taking the study drug, but will be contributing to research that may well help those suffering from lupus nephritis in the future. Also, they will have more tests and clinic assessments through the study than they would normally have in the course of their treatment, which may allow their own doctors to more thoroughly assess their condition.

If you’d like to take a look at the study website, it’s located at https://www.yourlupusstudy.com.   This page also has the pre-qualification questionnaire that will help volunteers know if the study is a good fit for them.

As with any research study, your private medical information will be assiduously protected if you choose to participate in the study.

Survey for SLE patients about communicating with family

Request for Assistance with SLE Research

Jun 4, 2015

 

Hello! I am a doctoral student in the Department of Communication Studies at the University of Nebraska-Lincoln. My research centers on health communication processes. I am conducting my dissertation research that I hope will improve our understanding of communication in family contexts for women with systemic lupus erythematosus (SLE). As someone who has SLE, I am interested in research that is aimed at better understanding the way that families communicate about SLE and what the implications are for this communication. Ultimately, I’d like this research to lead to a better understanding of how communication in our families can help us orient toward the disease and treatment of the disease in positive, constructive ways.

To participate: Participants in the states of Nebraska and Alabama must be at least 19 years old or older to participate, participants in the state of Mississippi must be at least 21 years old to participate, and participants in all other states must be at least 18 years old to participate. If you meet these requirements, have been diagnosed by a medical physician with SLE lupus at least one year ago, and have 15-30 minutes to complete an online survey, you can be a part of this exciting research!

To access the survey and participate in the research, simply click on this link: https://ssp.qualtrics.com/SE/?SID=SV_dgaALt3TLhSfTil. I would really appreciate your time. When the study is concluded, I would be happy to share the results with you. Thank you for considering being a part of this important research!



Kathy Castle

 Katherine M. Castle                                                    Dr. Jody Koenig Kellas
Phone: (402) 472-5658                                               Phone: (402) 472-2079
Email: kcastle4@unl.edu                                            Email: jkellas2@unl.edu