Thursday, March 24, 2011

Our diet is spreading- and so are the waistlines of those eating it

In the book "Eat To Live," Joel Fuhrman discusses how the human body can adapt to any diet- whale blubber, hunter-gatherer (nuts, fruits, veggies), seafood and rice (Japan), Mediterranean diet (hummus, eggplant, lamb, olive oil) and live quite well. Any diet except one: the American diet.

This diet is referred to by alternative medicine practitioners as the Standard American Diet ("SAD" for short). Yes, sad indeed. Processed foods devoid of nutrients and packed with calories, sugar, preservatives, salt, the standard American diet is a sure path to weight gain and diabetes.

Now that our diet is spreading around the globe and indigenous populations are beginning to suffer from the same diseases Americans suffer from, it's getting harder and harder to deny that our diet is a major contributor to the suffering and disease in this country (and now beyond, as McDonald's and KFC work their way into more and more countries).

Here is an article by a man who treats soldiers all over the world, and comments on the differences in body type (due entirely to diet) in different parts of the world:
http://tinyurl.com/4mbhzos

I mean seriously, how bad for you is junk food when you can use a junk food diet as evidence in a legal defense?
http://www.snopes.com/legal/twinkie.asp
Contrary to popular belief, the defense was not arguing that the defendant murdered because he was eating junk food; he was arguing that the defendant was eating junk food because he was not in his right mind! The fact that the previously health-conscious man was now existing on twinkies and junk food was proof something was very, very wrong. Hmm.

You know, I can really relate to this. When I feel balanced, and grounded, and at peace, I eat well. It's kind of a chicken-egg thing. Do I feel that way because I'm eating well or am I eating well because I am more conscious? Perhaps both.

Don't get me wrong. I love junk food. I'm a reformed crapatarian, and I still indulge in a little crap from time to time, as it keeps me from completely falling off the bandwagon and eating crap all the time.

There are however 3 things I never compromise on: I never eat gluten (because of my autoimmune conditions) and I never eat MSG or nutrasweet. Because of these choices, and my practice of chi gung, I am able to live pain-free with no immune suppressants.

I was very sick- kidney failure, anemia, peripheral neuropathy, congestive heart failure, stroke, migraines, fever, joint pain, pleurisy, etc. So don't think "Oh she just wasn't very sick." I was very sick. I was on 9 drugs and chemo.

I am now on one drug- a half-dose of blood pressure medication. And I believe if I would clean up my diet just a little more and also relax more/ work less/ have more fun, I could be off that one pill as well, and feel even better.

Yes, eating junk food makes you feel good for a short while. I will not deny that I love a sugar high. But I'd rather feel great all day than feel giddy for an hour then crash, and pay for it with my health. Don't be seduced by a twinkie! It's not worth it!

Carla Ulbrich, The Singing Patient,
is the author of "How Can You *Not* Laugh at a Time Like This?"
Get Carla's Book at Amazon.com
www.thesingingpatient.com

Friday, March 18, 2011

Could I have Lupus?

I recently signed up for Allexperts.com, where I answer questions about lupus from people who write in.
One of the things I am asked repeatedly is "do I have lupus?"

Kind of silly to think I could diagnose them via e mail, especially since I'm not even a doctor, or a nurse, or any kind of medical professional. But the one thing I have above many doctors is this: I'm listening, and I'm taking their problems seriously.

How exasperating to go to the doctor and be told you're imagining your problems, or that you're "just depressed" or  something other pat answer implying you're a hypochondriac. Seriously, if I want attention the doctor's office is the last place I'm going. Sit in the waiting room for 2 hours past your appointment time then get 5 minutes with someone who's not even listening... If all I want is attention, I could just make a sex tape.

Getting back to the topic at hand- how to get diagnosed. How to find out once and for all whether you might have lupus. Here are a couple great resources. The LFA lists the classic symptoms of lupus:

The Lupus Foundation

This website discusses the various blood tests (none of which are definitive) used to try to determine whether it's lupus:

My Life Works Today

Carla Ulbrich, The Singing Patient,
is the author of "How Can You *Not* Laugh at a Time Like This?"
Get Carla's Book at Amazon.com
www.thesingingpatient.com
Next time, I hope to discuss how all diseases are really just one disease, and wellness and illness are a spectrum.

Thursday, March 17, 2011

Thoughts on the new lupus drug, Benlysta

The lupus community is all abuzz over the release of a new drug designed specifically for lupus patients. Not a cure, by any means, but something that *might* help *some* patients reduce their need for steroids.

I voiced my concerns over this drug on my blog when I first heard about it. It is only effective in 42% of patients, which means it is only helping 7% more patients than a placebo (sugar pill). And considering how many times they can run trials and tweak numbers to achieve that result, it's probably no more effective in reality than a sugar pill, and waaaay the heck more expensive. And Lord knows what side effects it has (including death, if you want to call that a "side effect").

If Benlysta's promise is that it can reduce the need for steroids, well, so can lots of other things that are far less ricky and expensive. Like a gluten free diet, acupuncture, massage, eating lots more leafy greens and fruits, juice fasting, yoga. All those things are relatively inexpensive to do, have no risk, and they work.

Big Pharma saves lives, but it also takes lives.You know what's really weird? Lots of drugs actually cause the thing they treat. Prednisone- given to me to stop kidney failure- over the long term can cause kidney failure! Chemotherapy- given, among other things, to treat cancer- can cause cancer!

Thinking we can be restored to wholeness by just popping pills is the kind of stuff that comes from watching Alice in Wonderland too many times. "This one makes you smaller." "This one makes you happy."

How about "This one has limited effectiveness and costs $35,000 a year?"

Thank you, big pharma, for taking lupus seriously and putting our disease on the map so people will take us seriously. We appreciate the effort. If I get deathly ill again, I'll be taking me some prednisone to save my life. But currently I am well, and I got this way through a series of good choices.  I think I'll be sticking to my plan of actually building wellness via lifestyle and avoiding drugs unless I'm going into kidney failure.

Carla Ulbrich, The Singing Patient,
is the author of "How Can You *Not* Laugh at a Time Like This?"
Get Carla's Book at Amazon.com
www.thesingingpatient.com

Tuesday, March 15, 2011

pinkwashing: too much awareness?

Hot topic today: "pinkwashing."

Do we really need breast cancer "awareness" at this point? Aren't we all pretty much aware by now?

I'm not saying it's not a serious disease- it most certainly is- but the campaign around it with coloring everything pink and being reminded of it at every turn is getting to be too much. Meanwhile, women with breast cancer are still being bankrupted by the illness, and unable to access care. Much like so many other diseases.

And worse, the over-attention to the cancer of one specific body part leaves no understanding or funding for the cancers of all the other body parts.

I wholeheartedly agree with this blogger's assertion that cancer is cancer, regardless of what body part it inhabits. I wish all funds and efforts would go equally to all cancers. I also wish that large portions of the money would go to people who are sick *now* so they can get care and pay their bills while they can't work.

I would take it even one step further and say that serious illness is serious illness.  Because I have an autoimmune disease (one that almost killed me), it also get trivialized because it’s not “the big one.”
Excuse me? Kidney failure and a stroke, congestive heart failure and anemia are not serious enough?

I have heard stories of people offering free massages to breast cancers patients getting chemo, but if your cancer was in another body part, you were denied the massage. For breast cancer only.
In my own experience, on a small scale, I felt this same discrimination when I lost my hair (3 times now), I was not eligible to receive a wig from Locks for Love, even though I had had chemo. I had to go buy my own wig, and being as I was broke, I got a cheap itchy $40 nylon wig.

Yes, the women who suffer from breast cancer have a tough fight and many are brave women and admirable survivors. And many women have been lost to this serious disease.
And some of them are tired of being reminded of their cancer every time they go to the store and there's a pink ribbon on everything from tote bags to tictacs.

Also, a number of men and women with other diseases have suffered and died and been trivialized with comments like "at least it's not cancer."
All I'm saying is things are out of balance. And the pink campaign has done such a great job that there's no energy left for any other illness. Suffering is suffering, regardless of the form it takes.

I'm not saying we shouldn't love and care for women with breast cancer. I'm saying we should love and care for everyone, not to have to favor one sufferer over another.

This will never happen, but I wish we could put all the money raised for all diseases into one big pile and use it to help anyone who is seriously ill. I guess I just wish we had universal health care, like every other industrialized nation in the world.  None of us should have to stand around like beggars asking people to help us pay our medical bills because we happened to get sick.

Carla Ulbrich, The Singing Patient,
is the author of "How Can You *Not* Laugh at a Time Like This?"
Get Carla's Book at Amazon.com
www.thesingingpatient.com

Friday, March 11, 2011

GF in SF!

It seems to be easier to find gluten-free food on the West coast than it is back east. Here in San Francisco, where we are vacationing for a few days, when you ask about gluten-free people don't look at you like you have 3 heads. In fact, they might even start listing their many delicious GF options, as they did in this really cool restaurant a block or 2 from Fisherman's Wharf.



Hot Spud. It's a potato bar- you can put all kinds of salad toppings on your hot potato, or just get a salad (i got both!). By the cash register there are 3 desserts to choose from, *all* of them gluten free. What?! Yes, GF sweet potato cheesecake, GF sweet potato brownie, and rice pudding. Joe got the cheesecake and I had a few forkfuls- delish!

Proving once again that gluten-free does not have to mean flavor-free. I'm stuffed.