How do I say this? Happy lupus awareness month? That seems really inappropriate. We're not really celebrating the fact that this disease exists. On top of that, I'm a day late in getting started commemorating the beginning of this month.
I think we're finally getting it together. For a while, October was lupus awareness month. Then it was October for some lupus groups and May for others. And it was purple ribbons for some lupus groups and orange for others (I think that's still the case). And then there's House, MD. He's no help at all. I'll save him for another blog.
All that aside, here we are. For a disease that has over 1.5 million people diagnosed, lupus still needs some serious help in the awareness department. One of the reasons we need awareness is to cut down on the odd reactions we get from other people when we're finally diagnosed.
The comments I got when I was first diagnosed ranged from hurtful to just weird. Here I present to you, from my book (How Can You *Not* Laugh at a Time Like This?," The Top 10 Annoying Things to Say to Someone Who's Just Been Diagnosed.
I think we're finally getting it together. For a while, October was lupus awareness month. Then it was October for some lupus groups and May for others. And it was purple ribbons for some lupus groups and orange for others (I think that's still the case). And then there's House, MD. He's no help at all. I'll save him for another blog.
All that aside, here we are. For a disease that has over 1.5 million people diagnosed, lupus still needs some serious help in the awareness department. One of the reasons we need awareness is to cut down on the odd reactions we get from other people when we're finally diagnosed.
The comments I got when I was first diagnosed ranged from hurtful to just weird. Here I present to you, from my book (How Can You *Not* Laugh at a Time Like This?," The Top 10 Annoying Things to Say to Someone Who's Just Been Diagnosed.
3 comments:
Great post and video! I got a copy of your book, hope to review it soon on my blog :) ~ Peter
a few more annoying things to say:
1) it's never lupus (^&%$&^%$!)
2) can i have your car if you die?
3) it didn't come from my side of the family!
4) ooh i'm glad i don't have that!
5) (to someone who has poor balance) haven't you had enough to drink already today, young lady?
I also like the "oh lupus! yeah that's totally manageable"
Great. I realize that. But did you know "manageable" means "change every single thing about your life until you have a new normal...."
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