guest post: helpful tips on living with lupus

Today we have a guest post from author and lupus veteran (26 years and counting!) Mida Giragosian. I'm always interested in the insights of people who have lived with lupus (or any disease) for a long time. 26 years with a chronic illness will most certainly teach you something.

Here is her post:

Hi, my name is Mida Giragosian.

I was diagnosed with Lupus at the age of 21, and now I’m 47. Yes, I had a lot of life-changing problems in between those years, but now I look, feel, and sound better. We can all help each other get through hard times. I lived by these tips:

·      Live by FAITH, one day at a time

·      Write down things that make you happy. The list can motivate you every time you look at it

·      Always dress up as if you’re going to a party. If you look good, you feel good
More tips can be found in my book, but it is most important to wake up every day and to remind yourself: I WILL OVERCOME. Remember that everyday is a blessing, and that your disease does not define YOU!

For more information you can visit: www.youwillovercomethebook.com
Find us on Facebook: https://www.facebook.com/YourWillOvercome

What are your thoughts on these tips? And if you were to boil down your own lupus/ wellness wisdom to a few sentences, what advice you would give to other people dealing with lupus? What helpful tips would you offer them?

Leave your comments below!

'Til next post-

 Carla

Carla Ulbrich

The Singing Patient - humorous speaker, songwriter, and author

www.thesingingpatient.com

The Spoon Theory

One of the many frustrating things about having lupus, or any chronic illness, is trying to communicate to others what you're going through. When the disease is active, we often look better than we feel (thank heavens! it's one thing to look like crap, but who wants to also look like crap?), and some days we actually feel better than others. But the fact is, if you're struggling with an active chronic illness, life is different after diagnosis, and it can be hard to clearly explain your situation to "earth people."

If any of you have not seen or read or heard The Spoon Theory, you're in for a treat. This is blogger/ sepaker/ patient advocate Christine Miserandino's account of finally being able to explain to her best friend what it was like to manage very limited energy. The spoon theory is widely popular among those with chronic illness, because it seems to finally put into words what all of us at some point have struggled to communicate. Here it is being read by Christine herself:




I couldn't agree more with this: it can be a gift to have something in your life that forces your to live more deliberately. Thanks to Christine for this great explanation- a leap forward in communicating from both sides with empathy, compassion, and greater understanding.


Carla Ulbrich, The Singing Patient and Health Coach

http://tinyurl.com/348hroc - Carla's book

www.singingpatientwellness.com - health coaching- visit this site to get a free e book on nutrition! 

www.thesingingpatient.com tour dates, videos, CDs, books

www.youtube.com/user/carlaulbrich- funny medical songs