Thursday, November 1, 2012

I almost joined a cult

In my book, I mentioned reevaluation counseling as a great way to let off some steam and work through some emotional issues. I now want to retract that recommendation, and here's why.

I read a book several years ago titled
Healing Lupus: Steps in a Personal Journey  by Waverly Evans.
It is a self-published book and largely a workbook. Waverly had severe lupus and was able to completely heal from it doing just emotional work. She does not mention changing her diet or getting acupuncture or doing yoga, although looking at her website, she is now a yoga teacher and massage therapist, so those modalities may have been part of her healing journey as well. In the book, however, she gives much of (all?) the credit for her complete healing from lupus to Reevaluation Counseling, but it's important to not that at the time she was also doing "normal" counseling, as she was enrolled in a degree program in a normal university setting.

I believe we can heal from lupus. I do not accept the mainstream idea that all you can do is "manage" the disease with drugs and that you have to accept your "new normal" and just lower your expectations. Unfortunately, those who are putting time money and attention into research are focused entirely on drugs and genetics, adn I don't think they are going to find any answer there that will actually heal people. It might help people, and keep them from dying, but I don't think tweaking genes and administering drugs is going to free people from disease. I do believe that nutrition can heal people, often completely. And I do believe that people can be healed through spiritual means, and maybe emotional means as well. There are many kinds of healing.

Therefore when I read her book, it gave me hope that something as simple as sitting with another person and sharing your deepest hurts and releasing them might unburden me and allow me to completely heal. Because although I live drug-free and my lab tests are often negative for lupus, I do still suffer from frequent pain in my neck and shoulders (even when my labs are negative for lupus) and frankly I'd love to not have to work so hard at my diet. I am "managing" my lupus with diet. It beats managing it with immune suppressant drugs, but I'd love for it to just be gone. a Non-issue.

So... my wish for this is what led me to seek out reevaluation counseling. I wanted what Waverly had, total freedom from lupus altogether. And it sounded entirely benign and it cost nothing to try. So why not?

I went to rc.org and tried to find someone in my area. It took several weeks before someone responded to my inquiry, and then I found someone only 15 minutes from my house who was willing to teach me how to do co-counseling. Co-Counseling and reevaluation counseling are terms that are used interchangeably within the reevaluation counseling community. But reevaluation counseling is specifically one organization, and it is... a cult. I'm sorry to say it, but it's a cult.

For 2 years, I co-counseled with the person I found in my area. Sometimes there was another person or 2 and we would co-counsel as a group. You agree on how much time to spend per person, set a timer, and take turns talking about whatever issue you want to work on. All perfectly harmless, and even helpful to be intently listened to and not interrupted. It was all going fine, no problems at all. Normally, I learned later, people do not join RC (reevaluation counseling) the way I did, by reading about it in a book and seeking it out on the internet. Normally, people are invited to a "class" by a friend, and they attend class where they learn the techniques and beliefs behind RC.

Then I went to the weekend workshop, at at retreat in the mountains. It was very "important" that I go because THE leader of RC was going to be there giving talks, and he only comes around every 4-5 years. And it was at this weekend I started seeing red flags. People who needed to take psych drugs would whisper about it and not want anyone to know. One woman I counseled with confided with great shame how she liked to have a glass of wine, or even two, at night, and that RC teachers aren't allowed to drink (or have caffeine by the way) and that by drinking wine she was "letting down RC." In my head the word "fundamentalist" popped up. Then I went to a "mental health liberation" workshop, where the thrust of the leader's 30-minute talk was that there is no such thing as mental illness, only people who needed to "discharge" (laugh, cry, scream, etc.- IOW, release their emotions). No one should take psych drugs as they suppress the problem. I talked to my husband on the phone and told him about this workshop and he said "what?! sounds like Tom Cruise."

Oh, and apparently being gay is a mental illness caused by early distresses and can be cured with RC. And people expressed how they wished their significant other would give up 12-step and just come to RC and be healed. And although it claims to be about helping individuals, the larger goal of RC is radical left-wing politics.

People are encouraged to 'work early'- in other words, focus on their horrible childhood memories. And the good ones. And if you don't have any, they tell you to pretend you do, until something comes to you (this is where we get into the manufacturing false memories territory). When each of us was asked to share our earliest happy memory, I shared about playing with my cousin when I was 5. One guy shared how he remember growing arms as a fetus. Uh... really? (i'm sitting there thinking- why is no one doing a spit-take?).

When I got home, I googled "reevaluation counseling + cult" and wow, lots of hits. Harvey Jackins, guy who started this quasi-religion is now deceased but his son Tim carries on his 'work' (all the RC literature is written by either the founder or his son) and got his start in Scientology. Harvey was one of the right-hand men to L Ron Hubbard. OK, now it's all making sense. The more I read, the more Jim Jones parallels I saw. He has also, like many cult leaders, been accused of sexual assault on members of the organization. He also wants to change society via RC. If people criticized the leader, they were "excommunicated."

I never got "properly" indoctrinated because I never enrolled in a "class" (the normal way most people enter RC- a friend brings them in. They read all the literature, hear the lectures, then aim to become a teacher and work their way up the hierarchy ladder to teach workshops on things like... well, how mental illness doesn't exist).

For 2 years I did reevaluation counseling with my nearby friend, and it helped me sort through some problems and feel like I was heard. I believe we all have a deep divine intelligence, and if it is honored, and we are allowed to speak and think for ourselves, we can solve many issues through our own clear thinking. But we must be allowed to do so without being required to accept all these strange beliefs that come directly from scientology. Because once I am forced to accept those beliefs, I am no longer thinking for myself. Which is very dangerous.

There are other organizations out there, such as Co-counselors International, some of which are formed by ex-RC members who just do co-counseling without the RC beliefs. Just getting together and doing active listening. I may give one of these a try. Or maybe I'll just get a normal therapist,  or do some assertiveness training and journal my thoughts (which I do every day).

In conclusion, I retract my recommendation to seek out or join re-evalution counseling. I apologize for making this recommendation and including it in my book before I truly understood what it was. I had every reason to believe it was simply people getting together and listening to each other. I do believe active listening is a very healing tool and using this simple tool outside the "organization" of reevaluation counseling is helpful and healthy.

I stand behind everything else in my book. I hesitated to admit all this publicly, because it's embarrassing that I almost got sucked into a cult, and I worried about losing credibility by writing about it. But as a writer, I think you lose more credibility if you can't ever admit you made a mistake. And more importantly, I don't want anyone to get sucked into a disempowering cult because I recommended it in my book. Decide for yourself, but from all I have now read about it (not counting the book that led me to seek it out), RC is rehashed Scientology and a cult of personality. Mea culpa.

Here's a webpage with some articles about it:
http://home.comcast.net/~reevaluation-counseling/articles.html

Here's the wikipedia page:
http://en.wikipedia.org/wiki/Re-evaluation_Counseling

As always, in the spirit of wellness-
Carla

www.thesingingpatient.com


Thursday, October 11, 2012

Sharing Your Experience, Strength and Hope with Others

I'm a contributor to the website Allexperts.com on the topic of lupus.
I frequently get questions from people asking me to diagnose them- they send me all their lab numbers and want me to tell them whether I think they have lupus.

I guess they figure allexperts.com is manned with MDs or lab techs who are answering these questions in their free (ha!) time, but no, it's usually just folks like me, a fellow patient with a few more years' experience.

And even if I were an MD, I don't think I would diagnose someone over the internet without actually seeing them in person.

Still, I am really glad people reach out for help and write to the website, because it's so important not to just sit at home alone wondering if you're going to be OK while you're waiting for 3 months to see the specialist, in patient purgatory.

Most recently I was asked whether lupus was genetic and whether there were any new breakthrough tests. Here is my response (with name removed):

Hi-
Thank you for writing.
I'm so sorry for all that your family has endured.

There still isn't really definitive proof that lupus is genetic, but there definitely seems to be a connection to pregnancy and things flaring up.

Regarding tests- I do not know of any breakthrough tests.
But I can tell you if you ever do get definitively diagnosed with lupus, the medical solution will be to suppress your immune system. That will give you relief from symptoms, but as you can imagine, going through life with a suppressed immune system has its own set of problems that come with it.

I don't know about you, but when I developed lupus and my body was turning against itself I wanted to know why, for heaven's sake! All these tests and drugs and diagnoses- but no one could tell me WHY?

20 years later (I was diagnosed in 1993 after 2 years of going to doctors getting one different diagnosis after another until they finally looked for lupus), I have come to believe that my illness was caused by chronic stress and a diet lacking any real nutrition. I drank a lot of diet soda and rarely ate a fruit or vegetable, worked at a job I hated, 6 days a week, and had no time for fun or for doing what I wanted to do with my life. Not a recipe for well-being!

In 2002, I had 2 mini-strokes and was on 9 drugs plus chemo and transfusions to get the lupus problems under control. I am now symptom-free and drug-free. I live a life I love and I eat a lot more real food (I'm not perfect- I do eat chocolate!).

I was tested for delayed food allergies (most regular MDs will not take that seriously), and after I eliminated gluten, dairy, and nutrasweet, all my lupus tests went negative- as in no sign of disease.

So... I'm just one person, but I'm one very healthy person who used to be very sick. In fact I'm healthier than most of friends who don't have lupus! I do aerobics 3-5 times a week (Sweatin' to the Oldies never gets old!)- this is something I only dreamed about when I was hobbling around using a cane, unable to leave the house for a month because I couldn't get up and down the one stair to the outdoors. We can get better.

I wish you well, my friend, and send you love light and hope
Carla



Having read and answered dozens of these questions now, I think most people who write in are looking for hope and reassurance, and to know that someone cares.  If you have some of that to offer in any area and are willing to give an hour or so a week of your time, hop on over to allexperts.com and sign up to be an expert. Or join a local support group, or an online chat group, if you have an illness, and be there to help people who have just been diagnosed. You might be surprised what you have to offer a fellow human being who needs a little support.

Carla Ulbrich

The Singing Patient: Author, Humorous Songwriter and Entertainer

_____________

www.thesingingpatient.com- performance  info and dates
www.youtube.com/user/carlaulbrich - funny songs


"I am reading Carla's book How Can You NOT Laugh at a Time Like This? and loving it. I LOVE Carla's songwriting, so I'm not surprised that her prose writing is as smart, funny, and insightful as her music." - Christine Lavin

get Carla's book! http://tinyurl.com/348hroc

Thursday, October 4, 2012

Guest post: Eye health
Today we've got a guest post from Emily Joseph on eye health.

This is a topic of interest to me because I, like many people with autoimmune diseases, have Sjogren's symptoms (Sjogren's causes very dry eyes and mouth) and lately my nearsightedness seems to be worse, and, oddly, I can't read my iphone screen unless I take my glasses off. These are minor inconveniences, but I am concerned about any loss of vision, because loss of vision means loss of independence.  Please chime in, in the comments section, with your thoughts and experiences.


Lifestyle and Diet Tips to Keep Your Eyes Healthy

We go out of our way to try to keep our waistlines trim, our skin looking good, and our hair shiny and smooth, but not very many people think about one of the most important parts of their body - their eyes!

Other than those people who grow up with eye problems that require glasses or contacts, the vast majority of us barely think about our eyes even though we use them every day as our primary way to interact with the world. We know that eye problems can develop over time, but no one ever mentions that it might be possible to prevent or slow down some of the ways that our eyes can start to break down on us as we get older by eating better and living smarter.

It's true! Things like cataracts and macular degeneration can be slowed, and some diseases - like diabetic retinopathy - are directly related to poor eating habits. So if you want to keep yourself clear eyed and ready to face the world for as long as possible, try following these tips.

Give those peepers the nutrients they need. That means plenty of leafy greens, fruits - especially citrus fruits, oily fish like tuna and salmon, and protein that doesn't just come from meat (e.g. nuts, beans, eggs, and so on). Why these foods? Because they're high in the things your eyes crave: zinc, lutein, zeathaxin, vitamins E and C, and omega-3 fatty acids.

Wear sunglasses. We all know that UV rays from the sun are dangerous. Heck, many of us lather up our bodies in ridiculous amounts of sunscreen even if we're just walking down the block. So if you're going to be that careful with your skin, why wouldn't you do so with your eyes? Good sunglasses can block both UVA and UVB rays, and should even be worn by people who have UV contact lenses because the glasses will protect your sensitive eyelids as well.

Just say no to nicotine. As if smokers didn't have enough problems, here's another one: smoking has been linked to things like damage to your optic nerves, cataracts, and macular degeneration. On the flip side, having healthier eyes is yet another benefit that you'll get by finally managing to quit and stay tobacco-free.

Stay fit. Eating a healthier diet should help with this, but it's important to exercise as well. Why? Because fatty tissue itself might actually be harming your eyes if you have too much of it because it can soak up nutrients that would otherwise go to protecting your eyes.

Keep your blood pressure down. The American Academy of Ophthalmology says that macular degeneration is more likely to occur in people with high blood pressure. There's no definitive reason why, but many experts believe that blood vessels can be damaged when there is too much pressure in the body, which would make it harder to get blood to flow to your eyes. Less blood means that free-radical debris will stay in your eyes longer and it will be more difficult for them to get the nutrients they need.

Use protective glasses. Obviously you can't see if you poke your eyes out or allow some kind of damaging material to fly into them, so always make sure that you use protective glasses when working in any kind of environment where your eyes could be put in danger.

About the Author: Emily Joseph has been covering eye care topics including laser eye surgery for over a decade. When she isn’t writing, you can find her spending time at home or training for her upcoming triathlon.
About the blog host: Carla Ulbrich is The Singing Patient, a medical musical comedian who performs for patients, caregivers, healthcare workers, and even "earth people." She is frequently heard on Dr. Demento and Sirius XM's Laugh USA. www.thesingingpatient.com

Thursday, September 6, 2012

Benefits of Laughter


As many of you know, I'm an afficianado of laughter. I love to both partake of a good laugh and help others do the same at every possible opportunity. I love to laugh. I always have. It's one of my "vices." I also love chocolate. And I love staying up until 5am. And I love gambling. But thankfully, laughter has none of the consequences of my other vices. I've never blown $70 at a laughter table in Atlantic City, laughter doesn't give me zits or make me gain weight, and having a good laugh doesn't leave me sleep-deprived. Au contraire, my friends.

Laughter is rife with wonderful health benefits. It is a "vice" that actually makes my life better. In fact I only call it a "vice" in jest, as it is actually a virtue. But if I call laughter a virtue, we won't want to do it... :)

What's really therapeutic is when I can laugh at my troubles. It really puts them in their place. It gives me back my power. Many of you have read my book or heard my Sick Humor CD and you know that is what a lot of my writing is about- taking back the power by finding the funny in the pain. For example:




But often, I need some time to pass before I can joke about something that is causing me anxiety or frustration. In those times, I laugh at something else. For example, when my husband was under a tremendous amount of stress this past spring, and there was nothing left for me to say that would help, I would sometimes ask if I could turn on some standup comedy while we were in the car. I chose comedians who were light, and not sarcastic or negative (we both love Mitch Hedberg, for one). Over time, as things improved, we were able to joke about his actual situation too.

But you don't have to have comedy to laugh. Laughter clubs all over the world use laughter exercises. They just laugh at nothing! Thanks to insurancequotes.com for this great infographic on laughter benefits. It relates the benefits to stress reduction. But laughter can also be helpful in prevention, not just cure. True health is about maintaining a state of wholeness, joy, and radiant being. What makes you laugh? When was the last time you laughed so hard you thought you'd wet your pants? Where do you get your funny? Wishing you a laugh-filled day-

Carla
The Singing Patient: Author, Survivor, Humorous Songwriter and Entertainer

www.thesingingpatient.com

www.facebook.com/TheSingingPatient
www.twitter.com/singingpatient
www.youtube.com/user/carlaulbrich
www.linkedin.com/in/carlaulbrich
http://tinyurl.com/348hroc - Carla's book "How Can You NOT Laugh at a Time Like This?"

  Laughter Infographic

Thursday, July 19, 2012

guest post: diet that prevents cancer


Today we have a guest post from Jillian McKee on cancer prevention through diet.

Now I know that most of us with lupus do not have cancer, although it is possible to end up with both. And in fact, most of us with an autoimmune disease have more than one autoimmune diagnosis and we all (all of us in the modern world) have risk of cancer.

 

When I was first diagnosed in 1993, there was no internet (not for the public anyway) and little to nothing in terms of books and options, even in the world of complementary medicine, for lupus. Everything I did find that seemed promising seemed to contain the specific warning "contraindicated for systemic lupus" (AUGH!). 

 

I found I often just wound up reading books aimed at cancer patients and then adapting that info to fit my situation. After all, healthy food is healthy food, and a healthy mindset is a healthy mindset, right? Well, mostly yes. There are some things that work for almost everyone, like get enough rest, eat real food (not junk), drink water, and have happy thoughts.

So, even though this is a "cancer" post, some of this info may be of help to you. As with all blog posts, take what you need and leave the rest. And here we go:


A Healthy Diet Can Help Prevent Cancer


According to the National Cancer Institute, 35 percent of cancer-related illnesses are linked to malnutrition. When the body is not receiving proper nutrients, the immune system cannot fight free radicals and other carcinogens. When the body is under stress or ingests harmful substances, the risk of cancer increases. Cancer patients should improve their nutrition to prevent cancer and reduce the risk its spreading throughout the body.

If smoking and a sedentary lifestyle are also accompanying a poor diet, cancer risk can be as high as 85 percent. Cancer patients must constantly monitor what they eat. Diet not only affects physical health, but also affects our energy levels, self-esteem, and mood. Cancer patients must make positive choices to refrain from exacerbating their condition. Treatments for mesothelioma and others cancers can cause side effects, which can be alleviated through a healthy diet.

What Is Recommended?
In general, patients should select foods that are high in fiber, vitamin C, omega-3s and lycopene. Each plays a role in fighting free radicals known for causing cancer.

Green leafy vegetables, for instance, are high in fiber. Fiber reduces “colon transit time” and reduces the time that any carcinogens are in contact with the colon wall. With carcinogens leaving the body, friendly bacteria can easily replace harmful bacteria in the body. Americans should eat between 25 to 35 grams of fiber per day, but most only eat 10 grams. Though leafy green vegetables are a common source of fiber, fruits, beans, nuts, seeds, pastas, whole grain cereals and breads are also recommended. Fiber should be included in a healthy diet.

Fish high in oils are rich in omega-3 fatty acids. Salmon, tuna, halibut, herring and mackerel are all great choices that should be consumed three times each week. Polyunsaturated fatty acids such as DHA and EPA play a role in cancer prevention. Berries, brussel sprouts, and mushrooms are also good sources of these acids.

Antioxidants, anti-carcinogens, and bioflavonoids each are beneficial in preventing cancer. Foods rich in phytonutrients include dark green leafy vegetables, berries, legumes, citrus fruits and whole grains.

Soy protein is recommended for those at risk of breast and prostate cancer. Soy also contains phytonutrients that fight hormone-sensitive cancers. Genistein, daidzein, Bowman Birk inhibitor, and lecithin all play a role in the cancer fighting process.

Cancer patients should select foods based on the 80:20 rule. Eighty percent of food items selected should be from the plant kingdom and 20 percent from the animal kingdom. Patients who adhere to this rule are generally healthier.

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Bringing a wealth of personal and professional experience to the organization, Jillian McKee has worked as the Complementary Medicine Advocate at the Mesothelioma Cancer Alliance since June of 2009. Jillian spends most her time on outreach efforts and spreading information about the integration of complementary and alternative medicine when used in conjunction with traditional cancer treatment.