illness and emotions: michael jackson and deepak chopra

Maybe some of you saw on the news when Deepak Chopra was claiming that Michael Jackson's lupus was caused by childhood physical abuse. I have to say this statement was reckless and extremely not helpful to the cause of getting the public to take this illness seriously.

On the other hand, I do believe there is *some* emotional component to all disease. Our emotions are affected by our physical well-being and vice versa. And maybe some or even all illnesses are expressions of something hidden, deep and troubling. But it isn't fair to set lupus apart as a disease that is caused by emotional issues while other diseases such as cancer and MS are taken seriously and treated with compassion. Isn't it bad enough to suffer with a painful chronic illness without people throwing unfounded theories about emotional causes at us? Where's the compassion that so many other illnesses are treated with? What if lupus really is just caused by toxic overload from enviromental pollutants and vaccines? I seriously doubt that everyone with lupus was abused as a child. There are 1.5 million of us, and my parents were not perfect but they did not beat me. My troubles started shortly after a bad experience getting my wisdom teeth extracted, and subsequent allergic reaction to the drugs they gave me. Maybe we should blame dentists for all cases of lupus. Sigh.

Anyway, angry as I am about Chopra's statement- here we are, finally in the news spotlight and *this* is what is said!!!- I do entertain the idea that there are underlying *contributing factors* to disease. Louise Hay says the emotional contributors to all disease are anger and fear. Well, that at least gives me something I can work on. Everyone can benefit from letting go of anger and fear, both of which are toxic.

I had a friend who was very angry over the death of a friend of his, and he blamed the doctor. It was all he thought about, every day. He died a year later at 36 of a tumor wrapped around his heart. Symbolic, yes. A fine example of emotions manifesting physically. But we all had enough class not to sit there and say it to his face while he was suffering.

We can't single out lupus and say it's entirely caused by emotions and all the other diseases are "real" diseases caused by "real" things like germs and genes and viruses. I'm tired of being the redheaded stepchild of illness. It's real, Mr Chopra. Yes, there are emotional factors, just as there are with every single disease ever diagnosed. Anger and fear are bad for everyone. So is telling them their problem isn't real. Now I've got more anger to go deal with...

finding a good doctor

One of my friends just asked me how you find a good doctor.

First, i'd suggest checking out a DO (osteopath). they have all the training of an MD but they don't go through the "hazing" of internship, so they're still human. they also are more open to alternative medicine and self-care, not just ramming pills down your throat and sending you for a million tests.

Many M.D.s started out kind, curious and idealistic. then the system squashed and dehumanized them (ever see the movie patch adams?) so that, as in every cycle of abuse, they pass it on- to us, the patients, the vulnerable powerless group. the only cure is love, to love them even tho they are wrong.

Sometimes i feel singled out. even tho i know they treat everyone that rudely, somehow that doesn't make me feel any better knowing.

If you are stuck with the doc you have you can always try to make him/ her more human. Suggestions from bernie seigel and patch adams (both doctors) about how to get better care form your doc include hugging your doctor, looking at them compassionately, bringing them cookies or some other token of friendship, or act as you would if you were trying to get someone to like you.

it's ridiculous, but we as patients have to give the lvoe first if we want ot get it. being a dr right now really sucks
the pressure they are under and the BS they have ot deal with sucks the joy right out of their calling. it's no excuse for being rude or abusive, but it does help to remember that when dealing with someone who is only marginally offensive

you may find you like a cash-only doctor. Find one at one of these websites:

http://www.simplecare.com/

http://www.pricedoc.com/


ultimately, the best thing is word of mouth- ask around to people who live near you for someone who is still human.

Did Michael jackson have lupus?

If michael jackson had lupus, he would have to hide it in order to be able to keep working. that's how show biz works. you can't get anyone to insure your tour if you might end up sick and cancel because of a rpe-existing condition. so if i were him and wanted to keep open the option of working, i would hide the fact that i had lupus. also, lupus is so misunderstood that i imagine he did not want to have to be the poster child for it and have ot educate everyone on this misunderstood disease. he had enough crap swirling around him as it was.

lupus would explain everything- the umbrellas shielding him from the sun, the autoimmune skin disease, the need for pain killers and other drugs. And the cardiac arrest. Most people who die from lupus die of cardiac arrest.

some say that anna nicole smith had lupus, and that she hid it because she didn't want to be remembered that way.
very few celebs come out and admit to a chronic illness. lots of them come out and talk about cancer, because cancer has had a great public campaign of awareness and no stigma attached to it anymore. also, it's something that happens, then you get better. the chronic illness... is chronic.

healthy (and not) sunscreens

Folks with lupus are warned to avoid the sun.
Sometimes we can't completely avoid it, so we use sunscreen. But some sunscreens are filled with nasty chemicals that are really bad for us. Here's a great resource for finding a healthy sunscreen:
http://www.ewg.org/cosmetics/report/sunscreen09/Beach-Sunscreens

wheee

I just signed up to take a class at the PIT (horrible sounding name! but it stands for People's Improv Theater). It's a class on writing one-(wo)man shows. I've had this yen for bout 5 years now, and keep trying to squash that little voice. But I'm going to go take the class, because if you don't learn anything else from having a stroke and kidney failure, you learn that you only live once. And I'm in good enough shape to get over my New-York-city-o-phobia to go take the class. 9 times.

I remember seeing Dead Poet's Society (movie) shortly after recovering from my first horrible bout with the big L. Thats was 15 years ago, but I remember Carpe Diem! Seize the day! And that the main character killed himself because his father would not allow him to pursue his dreams.

In Bernie Seigel's book, Love Medicine and Miracles, he asks all his patients what their lives were like for the one year before they got sick. In my life, I had squashed myself down into a life I hated- a job I hated, a church where I didn't fit in in a town I didn't like, and living in a trailer park where one of my neighbors broke in on my just a week after I moved in. While I was there. Sleeping. (He's in jail, last I knew). Is this a recipe for health? (That's rhetorical). My family moved me back home to my hometown. I got a fresh start. When I started to regain my strength, I decided to rebuild my life from scratch, but on purpose this time, architecting a life that was worth living.

Will that save me from ever getting sick again? No. But my life is worth living now.



I've bought about 6 copies of this book over the years. it was life-changing for me: